Monday, October 7
Our fam has been excited about this since the first single released in the summer. While we were waiting for a plan in the ER last Monday night, Hubs downloaded the full album for me. If you haven't listened to or purchased this awesome new worship album yet, I highly recommend!! Hillsong music continues to bless the church worldwide. I know for me, so many of their songs parallel different points and milestones along my life journey and testimony!
I've had track six, "Love Goes On," on repeat today. Retreating into the lyrics...
We found love that never runs dry
From the depths
To the sky
Eyes fixed on the One who knows no end
You stand strong for all of time
In the joy
In the trial
You are the Beginning and the End
Your love goes on
Your love goes on
Ever our heart will seek
Jesus in everything
From sky to ocean deep
Your love goes on
Through every rise and fall
We are forever Yours
One thing we know is sure
Your love goes on and on and on
From dawn break into the night
You're here with us
You're on our side
Your arms are forever open wide
You stand strong for all of time
In the joy
In the trial
You are the Beginning and the End
Hope awakens in You
Saturday, October 5
Wow, things have been crazy, but today really took an interesting turn!
I came down with a very high fever last Saturday night, and the worst pain all over my body. I'm not unfamiliar with these symptoms, but it's been nearly a year or longer since they came around. Sunday I was in bed all day with the same fever, a pain around my liver area, and feeling nauseous. When Monday I awoke with the same issues, we called my hepatologist, and they said to get in the ER immediately.
We grabbed a few things, scooped up our angel Victory, and made a beeline for Seattle. God always has us covered in these situations! It was nearly rush hour, and the worst rain storm we've had in quite some time, but we got Vicky safely to her destination and us to Seattle, almost fifty miles in total, completely safe and no problems.
It ended up that I was dealing with an episode of "cholangitis." It was confirmed through the last MRI/MRCP and liver biopsy that the disease I had that ruined my first liver and caused me to need a transplant, Primary Scleorosing Cholangitis, has returned in my new liver. What is that disease all about you ask? Well, the bile ducts get inflamed, as with other autoimmune diseases (stinkin inflammation!), and scarring and infections and things happen, and sometimes you need a liver transplant because of all the damage. Anyway, this was the first time this "recurring PSC" has caused any issues for me. After tests, and specialists and hospitalists putting their heads together, they decided I was dealing with a blockage ("stricture") or at least severe inflammation in one of my bile ducts, causing an infection, hence the very high fever, chills, nausea, vomiting, and - oh I forgot to mention before, I turned a nasty shade of jaundiced yellow almost overnight.
So I began receiving antibiotics through my IV, and actually Tuesday morning already saw improvement in my lab tests. My bilirubin on arrival at the hospital was 6.9, and Tuesday it was down to 5.something, and Wednesday 4.something... Yeah God!!
But the antibiotics alone aren't what they usually rely on. I went in for an ERCP on Wednesday, expecting that they would go in with a scope down my throat, through the small bowel, and enter the biliary tree and open up the blockage with a balloon, or stent if necessary. It all sounded so simple, and the doctor really expected to get it done with no complications. The whole thing was supposed to be about 45 minutes.
Well, when I awoke from anesthesia, he came in and told us that he was unable to even get into my bile ducts. My anatomy is different because of my transplant; my "hook ups" are a bit wonky, and there was a 90 degree angle that he tried for AN HOUR AND A HALF to get the tools around, and just couldn't. The doctor was so kind, and he looked like he was about to cry, and kind of just ran off after he told us the news. I was so disappointed, because I thought for one thing, "well gee if this is just the first of these episodes, and a person with PSC deals with these ongoing for years, what in the heck are we going to do [next time]?!" And I felt so bad for my poor doctor who wanted to help so badly and tried so hard.
It wasn't such a lighthearted moment as I'm making it out to be here. It was overwhelming. Kind of devastating. You may have seen my Instagram pic my hubby posted....
So fast forward to today. I got to leave the hospital yesterday, and must be on oral antibiotics for ten more days. We're praying that the infection and inflammation dissipate completely, this knawing pain I'm having in my right side goes AWAY, and no more episodes of cholangitis occur. No sweat :)
I follow up with my hepatologist next week, and I suppose we'll address some serious topics. Like, what if this happens again and the infection moves quicker, and they can't get in the bile duct to fix it? They did tell me not to mess around with these kinds of symptoms, because one of these infections can go septic very quickly. meaning your whole body is fighting an infection of the blood (a.k.a. even more, ICU-type serious). There is an option at that point, they said, of going in through the side of my abdomen kind of like an old fashioned liver biopsy, where they can address a stricture and infection that way. Much more invasive and risky, too. Blah. Praying that that is never needed!!!
In the meantime...
We are surrounded by the most incredible people. Have I mentioned that? I think I have, but I can't say it enough. I can't even get into how overwhelmed and nearly numb from complete awe that Hubs and I are feeling today, at God's faithfulness, and the loyalty and get-it-done type of people He's put in our lives.
We've been needing to get to remodeling our living room for quite a while. On the 15th of this month it will be five years since we moved into our house, and since we moved in, we've been battling issue after issue. When we bought it we thought it was, although old, just in need of cosmetic updates, and a lot of love and TLC. But then the issues began.
We first suffered a miscarriage in January 2009, and found mold growing on our bedroom wall and mattress just the same day. (Yeah that was an overwhelming day.) We slept on an air mattress in our living room for two months while my husband tore out that room down to the wall framing, put in insulation and drywall, and made it safe for us to sleep in there. This was in the afternoons every day, and into the late night, as he worked the 3am to 11:30 am shift back then. We got that done, bought a new mattress, and enjoyed our warm, quiet new bedroom sans-oozing-wall paint so much!
Labor Day 2009 thought we'd do a little project in the kitchen - new countertop and cabinets around the sink. No big deal right? Well, he took out the old sink cabinet, and found that the floor was rotten from a previous leak... down to the joists. We then had to dive head first into an unplanned, unexpected, complete gut job of our kitchen, floor joists to ceiling torn out. Everything in the subfloor was rotten and walls were crumbly old plaster and ... short story, that was a two month adventure of microwave cooking and living in even less than our house's 650 square feet offers, because all of our kitchen contents was in our living room as he worked on it. Again during afternoons after working eight hours a day at his full time job.
When I got pregnant with Victory, we knew we needed to redo the second bedroom like we'd done our own, as it didn't have insulation in the walls, and was musty and the plaster walls clearly needed to go. Another project for my awesome hubby and his not-so-free time. When we tore out the wall between the bedroom and the bathroom, there was the creepiest looking, gross, anenome-armed, tendril-waving, nasty-colored mold I ever could've imagined, on the inner side of the bathroom wall. You could see that there had been a water leak from the roof in the past, and they just replaced two square patches of wall, and left the rest. NOT A GOOD IDEA! It was nasty. It freaked me out. So that one bathroom wall had to be replaced at that time, but we couldn't do the bathroom then too, so we had some open holes where it just didn't go in right next to the old plaster and tile, and creatures from the crawl space would come up through the cracks to visit some times. Ick!
Then we finally got to do the bathroom, as the tile was done wrong, outdoor grout was used to do it (a.k.a. water would go right through it!), it was crooked, and it needed some serious help. Also the window was put in right where the water goes when the shower is on... not good! When that remodel was started, the entire outside wall had to be cut out as even the framing under that silly window was rotten. We have a funny picture of one of us (pretending to be) on the toilet waving out to the backyard through the huge five feet by eight feet hole. :)
So, all that's left now is the living room. With all of my health problems, and because of mold issues we've had in the coat closet in there, we figured there were some problems with moisture, and really looked forward to getting that room's icky old plaster torn out, getting the walls insulated, and finally finishing this little house.
Because of all the health issues lately, a few incredible friends of ours teamed up and went in today to start the job, including bringing in a mold inspector. Well, he found that the problem wasn't so minor as a little musty closet. The report? There is mold growing on all of our floor joists under the house. Black mold. For someone with a compromised liver, this is lethal within a very short time once exposed. We cannot live in our home until the floor joists are replaced under the house. This job will cost $20,000 to $25,000.
This is where our incredible friends come back into the picture. They started a fund for us the other day, with the plan to raise enough money to make our house safe for us, and to cover the medical bills that have piled up this past year of craziness. The timing of all of this is nothing short of God-ordered. I look back at all we've been through, and know that if it weren't for the crazy things we've already walked through with this house, and my health, we'd be steam-rolled by this. It is insane, to be told in a matter of hours that you cannot go home because it will kill you. We are nomads. Houseless! Don't get me wrong, I'm emotionally EXHAUSTED just experiencing the magnitude of it all. This crew of faithful friends and neighbors were at our house for ten hours today, packing up our belongings into boxes, getting them to safe places, setting it up for this work to be done. Believing that the work will get done, that God will provide, and we'll be able to get back in our home, and finally, live there being healthy and safe and comfortable.
I know that it will work out. God will provide. When things can't get much worse, and He comes through for you, and this same process happens over and over, and over again, you develop this roll-with-the-punches kind of ability that (especially if you're like me - everything in it's place, a place to call home, home is where you ground yourself) you just have to laugh! God always always always has our best in mind, and when you trust Him, you get to experience the most amazing God-events and acts of humanity and miracles and coming-through-in-the-clutch moments... God is amazing, you guys!
I am grateful to be experiencing the calmest peace right now, knowing that as long as I have Him, and I get to be near my treasures, my dearest loved ones, that is all I need, and the rest is just extra blessing! And for that I say, we may be house-less, but we are not home-less. After all, this world is just our temporary home. There is always something more to learn, more character to develop, more JOY to CHOOSE! Okay, God, I'm game. Keep growing me. I trust You. You will never fail.
P.S. I may be rolling with the punches now but... check back with me in a few weeks. Haha! (I'm just human.) I hope we can be home in time for Christmas. :)
Oh! and the link to the fund is: www.gofundme.com/OperationAgnew
Little house, see you in a while!
Friday, September 6
I just got off the phone with my doctor.
"Well, good news and bad news."
My biopsy results showed No rejection that they could see, and no new issues such as autoimmune hepatitis. Good news!
She said there is always a chance it is a chronic rejection that is not detected in biopsy, but not highly likely.
As far as a reason for the elevated liver enzymes, there is no clear answer. I will repeat blood tests in a couple weeks and hopefully numbers will look good!
In the meantime, no medication changes or additions, and thankfully I'm almost tapered off Prednisone and don't have to go back on!
There was some more information from the biopsy, though.
The Bad news, "You do have PSC [primary sclerosing cholangitis]."
That is the disease that completely ruined the liver I was born with, and caused me to need a transplant at age 16. My doctors have been talking about the PSC being "back" since a biopsy I had four years ago. But it was never confirmed, and I always take the comments with a grain of salt. Not because I'm in denial, but because I know my God is bigger. There is the lens of science, and the lens of faith - the latter is much more real to me than the former!
Only in the past two years, and really last couple months has PSC come up in discussion more, when I did my MRCP test and this last biopsy.
The MRCP showed no blockages in my bile ducts, great news. PSC is an autoimmune-caused inflammation of the bile ducts, and what happens over time is the liver becomes scarred, from bile not being able to get through and backing up in the liver. (For photos of what a healthy liver looks like vs a liver that's been ruined from PSC, see my post http://shechoosesjoy.blogspot.com/2011/05/my-liver-transplant-in-photos.html?m=0)
So the biopsy showed PSC. This isn't anything urgent, but something to learn about, so I can do all I can in the physical to take care of my body, and get all the info I can to pray more specifically!
I was so young and sick when I had PSC before transplant, I don't remember the day to day Ins and outs of living with the disease.
Example, I've been having pain in my upper right side and some yellowing in my eyes from time to time. I forced myself to be brave and ask my doctor about it (it really is worse not asking, and making up 'what if' scenarios in your head!). I learned that with PSC you can have transient obstruction of bile ducts, which clears up on its own, versus bad strictures which need a sedated procedure to put in a stint to open up. The discomfort of what I'm experiencing is really high some days (like today!) From inflammation in my liver. But I'm grateful it's not the alternative kind of stricture or something requiring me to go to the hospital!
All that to say, first, thank God I'm not having acute rejection and I have no hepatitis! Second, I have some learning to do about PSC as an adult. Third, to my Champions Centre family, you'll probably see me up front often when we have prayer during service, because I'm not going to stop believing God can heal me, or asking Him to do so!
Thanks for your continued support and encouragement. Over the years I have gotten pretty good at "encouraging myself in the Lord," as the Word says we need to learn to do. I wouldn't have survived up to this point without learning that skill! It's funny, when someone exhibits a strong faith and a positive attitude, and stays busy encouraging others, as people we may start to think, "well they're good, they don't need anything from me." Incorrect!
Never underestimate the power of letting someone know you're praying, or sharing just a few encouraging words, "you're doing good!" "Keep it up!" "God's got this!"
A few months back I got a Tweet from a friend, right after I got home from the hospital, in response to a post I made about Psalm 27:13 ("I will remain confident in this; I will see the goodness of the Lord in the land of the living.") I was putting it out there, declaring it in faith about my life. And my friend responded, "You WILL see the goodness of the Lord." Wow, how those words gave my faith a lift and even today after I got this news, I heard those words in my head.
My best advice for thriving through a challenging season (or in my case, lifetime, haha!):
Be vigilant about what you're letting get in your mind and heart (consider your relationships, social media connections, music and TV influences...). Feed your faith, starve your fears (example: concerned about your health? stay the heck off WebMD! Lol!). Surrround yourself with life-giving people who bring out the best in you and believe and speak good over your life. And Trust God!
"I will not die but LIVE, and will proclaim what the Lord has done."
Saturday, August 31
On Wednesday I had a transjugular liver biopsy. My liver function tests have continued to stay elevated and so we need to get some information. It was done in Interventional Radiology, with sedation, and they put a plastic catheter down my jugular vein through my neck, and took measurements of the pressures inside my liver and portal vein. I have never had this kind of biopsy before, all the rest have been through the abdomen. It wasn't bad, and I was sedated. But I remember saying, "ouch ouch ouch!" when they removed the plastic catheter and were inserting the metal cannula (which has a hook on the end, the doctor told me- glad I didn't see that!) And vaguely remember them saying they were giving me more medicine. They use the metal hook to take a few biopsy tissue samples of the liver. Before the procedure, the doctor explained that there was a chance because I am post liver transplant with different vein "hook ups" than most people, that they couldn't get the samples without going through my abdomen. But it worked, PTL!!
I was super groggy for a long time after in recovery, and they told me they gave IV Benadryl to help me through the biopsy part- that explained it; that stuff knocks me out!
The doctor told us that the pressure measurements look good, yeah! It will be probably middle of next week before we hear on the biopsies. Just continuing to believe that God is healing me, no cirrhosis, no PSC, in Jesus' name!
I am thankful for great doctors, a beautiful new hospital facility I got the best of the best technology for my procedure, and great staff that always welcomes my little one there with us. Here we are just after I got moved to my bed on the recovery floor. She said, "me, mommy's bed!" So that's what she got :)
I love my sweet girl of courage!
Tuesday, August 20
I am a firm believer in the promise that God will replace or restore what has been lost. Time. Strength. Love. Relationships. Purpose. Family. Friends. Joy.
I love the Scripture, "I will restore or replace for you the years that the locust has eaten." (Joel 2:25)
A close second, "what the enemy intended for harm, God has meant for my good." (Genesis 50:20)
At the moment I'm sitting here drinking iced coffee, watching a little HGTV and skimming Martha Stewart Living mag on my lap (the June issue, because I'm that behind, haha), and listening to my girl chatter away to her dollies through the baby monitor. Rare Momma recharge moment, and I love all of it- including and especially the full day we've had leading up to this little respite. Because it's still new to me after months and months of being too weak or sick to do this? Probably! But mostly because, for weeks now, I'm overwhelmed with the fact that that it's such a gift to have work to do, and strength to do it.
You don't realize how sick you were until you finally catch up from nine months of survival mode and realize: "I'm not a terrible cleaner, or home owner, or pack rat- I was just conserving energy that I needed to fight and survive!" :)
Grace for the self: so important.
Victory turns two on Friday. TWO! Where does the time go? Well, I know where most of this year went. Since last October (ten months ago) I've been in some crazy health circumstances. Thankfully, miraculously, wonderfully, the ITP crisis has been quiet - in remission as the doctors would say- hopefully completely Healed, I say- for weeks!
Now (because if it's too quiet, we'd be bored?) I'm facing a different kind of health issue. Urgent, but not critical. My liver enzymes have been elevated for weeks, and there's talk of rejection, biopsy, ruling things out, confirming other things... a bit frustrating in how cryptic and unavailable the Drs have been, and I haven't been able to speak with my actual hepatologist in weeks. August = vacay month it seems :)
I should be hearing the plan by tomorrow though, and it will be good to know what it is.
Despite this new challenge, I am overwhelmed with satisfaction at how well our little family not only survived the past ten months, but we thrived. And we are determined to keep thriving, no matter what we face in the weeks and years ahead.
Victory is turning two on Friday and I don't feel like I've missed one thing. God is so good. And my little girl is such a blessing. Earlier today she climbed up on a kitchen stool, turned on the faucet, and started rinsing dishes. I asked, "do you want to hand me those, you rinse and I'll load the dishwasher?" An emphatic, "Yeah!" was her response, and together we loaded the dishwasher. Pretty soon the sink was empty. This is her norm. Watching us do things around the house, and wanting to join in or take over and help. The joy she brings to our family is immeasurable.
My 23 month old is speaking in short sentences already. She jumps and dances and laughs, and has an incredible sense of humor. She sings. She lifts her hands sometimes during worship when we livestream church.
She is brilliant, watching something once and imitating it immediately, or days later, with attention to detail, and determination.
By the way... This is not a mommy brag post. This is not meant to make you think I have it all together. Oh boy am I still a work in progress. This is a brag post I intend to be pointing up to my amazing God. Every good thing, every gift, I just smile and look up...
I just marvel at how so many blessings can be wrapped up in one tiny person.
However: do not be mistaken. My girl is of course about to turn two, and showing all those parent-character-testing qualities as well.
[In fact I had to remind my girl at least three times while working on this post, that this is indeed naptime... she finally fell asleep... and now a quick twenty minutes later she's up. Win some, lose some :) ]
I look for the teachable moments- for her and for me- and smile at the end of each day. What a gift it is to be a mom. Especially after losing a baby four years ago, and when this little one was just two months old, being told the liver disease that ruined my first liver has returned. And this year of absolute craziness where in June my Hubs - the always believing for healing, never expressing worry, rock of our home- said (after I was out of the CCU and home from the hospital) he thought he was going to lose me.
Recently, many of my friends and acquaintances have been either announcing first pregnancies, or a second or third little one on the way. It can be easy to get sucked into a poor me, no fair mindset. We could not even think about trying to get pregnant again this year, as the implications of a pregnancy combined with ITP could have been devastating for me and a baby. We have to do such a balancing act of faith vs practical. Especially because I'm a big faith, "but God!" person.
I may never be able to get pregnant again. Or possibly, I shouldn't ever get pregnant again. If my liver doesn't shape up, the doctors will start telling me things like it is unwise and dangerous to be pregnant.
Where some couples only need to decide how many children they would like to have and how to space apart the pregnancies, we have to talk about things like, "is my body even capable of carrying another pregnancy? What if the ITP returned? Will colitis flare again like last time? What's my liver going to do? How will these meds affect the baby?" And that horrible question I learned to stop asking some time ago, but I'm sure some of you wonder if we do, "What if a baby survived but not me?"
I'm not trying to be a downer. I am normally pretty positive here [she chooses joy isn't just a title, it's my life!], and truly that is how my thoughts are most of the time. I've done quite a bit of work on my thought life the past four years. Today I just wanted to shine a little light on my very real world, not all rainbows and cotton candy clouds, and show you (though I'm not sure I'm doing a good job sticking to the point Lol!) that even with seemingly unfair or frightening circumstances, you really can thrive! I hope I am sharing how it is possible to walk through life with serious circumstances, and at the same time have complete faith in a God that does the impossible every day.
Victory is a double blessing of a baby in one little girl, and not a day goes by that I don't see that and thank God for that.
Zechariah 9:12 in The Message says, "This very day I'm declaring a double bonus- everything you lost returned twice-over!"
My heart rests because, while I dream of having a bigger family one day and I believe God can and will heal me, and may make that dream happen, my heart is full being a mother to my one wonderful Victory.
What if God has already fulfilled a promise to you, and you just haven't noticed it yet? You looked, but didnt see?
We need to look for and see the good in what we have, before jumping on a train of thought comparing our life to another's, or whining at how unfair we think life is. If I spent all my time only wishing I could be pregnant again, or have more babies, or that we had the resources to adopt instead of paying medical bills, I would be robbing myself and my family of being fully aware and grateful for all I have in the present.
I missed a lot of days and nights with my girl this year, in the hospital, the infusion center, the clinic, my bed. I had to trust that she was going to be just fine, and so was I. I had no choice on my physical location, and the way I saw it, no choice in my thoughts either. I had to fight to trust!
And here we are.
Celebrating TWO, celebrating my platelets recovering, celebrating our faithful God!
Instead of looking at what I miss, I choose to see the restoration, the full replacement and overflowing beyond, of what was lost.
And celebrate, celebrate, celebrate,
rejoice, and thank God! :)
Thursday, August 8
It is a wrap! And in the words of my pastor, Wow wow Wow Wow wow!
We just finished an incredible Team Church Conference at Champions Centre. The best ever. Jesus was present in and amongst everything. It was over the top rich in quality and quantity. We are all reeling from the worship, wisdom, watershed moments... simply too much to sum up yet or in a short post.
I just want to say, I am psyched that finally, my fifth year at CC, I got to live my dream of serving at TC Conference. I am exhausted, I gave it every thing I had. And that is enough. My body stuck it out (yep I'm completely worn out today, but I made it!) and my labs even came back this week BETTER still. Thank You Jesus!
I love this House, I love my church family, Iove Jesus' church, and am so excited as we are in amazing days of love and unity amongst the Body of Christ. We are alive in this era - these ARE the "good old days" - for such a time as this! Great things ahead... :))
Tuesday, July 30
Wow, that felt good to finally accomplish! When everything unnecessary and unused is OUT of a space, and it just has what we use and need, I feel so much better. So yay me, for slowly but surely working on things and getting to enjoy being a wife, mom, and domestic diva a bit again :)
One bummer we found out is that there is mold under the wall surfaces in our coat closet, and so alas, ANOTHER remodel looms. It will be the last one, it is the closet in our living room, which is our one remaining room with old plaster walls and no insulation. But finding the time and resources to do that, in an already busy and balancing act of life, is a challenge. Good thing Hubs is always up for a challenge - by fall, we will get it done I think, and be much healthier and cozier this coming winter!
In the meantime, I have boxes of my crafts supplies, fabric stash, glassware, birthday party supplies - you name it, sitting in my living room, waiting for a finished closet to be put into. Character building, I say ;)
So, moving on from house to health - here's what's been happening:
Going with the most recent events, I am on Prednisone right now in case of liver rejection.
My LFTs (liver function tests - ALT, AST, Alkaline Phos, Bilirubin) have been elevated pretty consistently for a couple months, actually since switching from Tacrolimus to Cyclosporine as my anti rejection med. My doctor is very calm about it, which I really appreciate and need, and isn't panicking, but started me on Prednisone a couple weeks ago and we are going to recheck my labs tomorrow (Wednesday). If numbers aren't improved, I have to go in for a liver biopsy. They will want to check for rejection, as well as any issues like infections and what not. It occurs to me that after so many blood transfusions this year, they will look for hepatitis as well. It will all work out!
Interestingly enough, the reason they can do a liver biopsy without the risks of bleeding is that...
ITP seems to be in total remission!!! GOD IS GOOD!!! My platelets have been steadily climbing since I left the hospital in mid June, and that has been an absolute encouragement. It is so fantastic to get a call from my hematologist or go online to check my results, and find that the platelet number is higher and higher every time. What a gift after such a crazy year of scary-low critical platelets! Most recenty, last Monday, my platelets were at 149,000. The range they call "normal" is 150,000-400,000, so WOW, I was just one point away :)
In light of the elevated LFTs, I went in for an MRI/MRCP earlier this month. They were checking to make sure I did not have any strictures in my bile ducts, as when you have PSC (Primary Sclerosing Cholangitis) liver disease, those can become a problem, and cause back ups and pain, cholangitis infections, and elevated numbers. I refuse to accept that PSC is back in my new liver, despite what the reports may have shown over the past couple years. I believe God healed me with my transplant, and I am sticking with that. And awesome as He is, God gave us a great report on the MRI! No strictures, and actually improved liver tissue in an area that radiology report eighteen months ago said was looking not so good.
Awesome, right?! :)
Finally, the other health event I had was my annual colonoscopy. Woo, party time! (Haha!)
|colonoscopy prep solution|
Then I started doing research, asking questions, and had an interview with my doc and asked all sorts of things about colectomy, ostomy bags, and so on. If I am not completely healed of colitis, a surgery and ostomy looks like it is in my future. That was another big mental thing to get a grasp of, and took a bit of time.
|Snuggles with my girl while waiting for my doctor|
|My smarty girl, checking me out after she saw my doctor do the same thing :)|
Kind of grossing me out, I had a number of polyps in my gut. I've never had that before, even having colitis for nearly 20 years. But they were all biopsied, along with a bunch of other spots of gut tissue - and everything came back clear, no malignancies, no dysplasia! Yeah Jesus! :)
Also, the report, similar to my Liver MRI, came back showing that my guts look better than the last scan, in two areas. There is definitely colitis activity and my transverse (across the top of my abdomen) colon looked worse, but the ascending and descending colon areas are improved. So, hurray for that!
Thankfully, things have been pretty quiet with colitis and ITP these past six weeks. I am so grateful for that! Not having to worry about bleeding and transfusions and going back to Critical Care or riding in an ambulance... phew! Thank You Jesus!
What a gift it has been to be at home, at church, and around our city with my sweet family and incredible friends, just enjoying the summer weather and all that is good in my life. WHAT a gift.
|We may live in the 'hood, but our summer sunset views are million dollar :)|
Today is a new day, full of new gifts, opportunities, and potential! Seize the day - look UP and around at all you have been given - life is good! Xo!
"So if you’re serious about living this new resurrection life with Christ, act like it. Pursue the things over which Christ presides. Don’t shuffle along, eyes to the ground, absorbed with the things right in front of you. Look up, and be alert to what is going on around Christ—that’s where the action is. See things from his perspective."
-Colossians 3, MSG